Well, I know I've been remiss about posting mid-week for the past 2 weeks. Sometimes it's difficult to just find the down time to gather information and process it.
I was able to begin re-connecting with the blog list I have been following (approximately 64 of them, believe it or not), and realized how much information there really is from people who are not all that different from myself.
So, I've decided to share some of their information with you, as well as their sites, in case you care to further your own exploration. I've also posted all these on the Google+ site, Lewy Body Support/Blog.
The first of all these, that I'd really like to share is this one from Lewy Body Journey. The author is a wife, mother, grandmother, who is caring for her afflicted husband. In her latest post, Mr. Lewy Visits like a Whirlwind, she recounts the adventures of the past few days.
What she describes is a further progression than my mother, but something we could anticipate within the next months, as Mom's "journey" seems to be plowing forward. But as the disease is peculiar, it's difficult to know if she'll actually experience syncopy; she does need some help balancing in small ways, but to think she'll also face-plant.....
I believe if you read this, it will give you a better idea of the disease in reality.
________________________
The next source is Dementia Journeys. This was inspired by the affliction of a grandmother. There are so many resources here, and the blogposts are very good. Of course it's out of Queensland, Austrailia.
One blogpost has the upcoming event on November 20 - 22 at 8pm, GMT, which makes it 12 noon here on the West Coast of the US. It will stream live online. In order to receive information about the stream and to participate, you'll need to subscribe to the mailing list.
What is going to be streamed? The show, "Memoria". This will be a presentation from Cardiff, Wales, with persons having a dementia diagnosis, caregivers, and professionals in the field. From what I gather, this should be quite an interesting and informative experience. It will also be intriguing as I've been reading comments in the MOOC from those in the UK, as well as other regions of the world.
Check it out.
________________________
For Reading, there is a new book out, which is also listed on Dementia Journeys. The title is, "We Are Not Ourselves" by Matthew Thomas.
This is a book about a woman with early-onset dementia diagnosis. The reviews have been favorable, and although it tackles a tough subject it is quite readable. It was written due to such an experience, and is well-researched. I look forward to giving it a read.
I've already downloaded it on Amazon (it's easier to read an e-book at 618 pages...). I'm sure there are also those of you out there who would appreciate the book, as well.
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Next, there is the Lewy Body Dementia: Ten Plus Years of Care, Commentary and Cleaning Up, blog.
Yes, the title may sound a little bitter, but it's not, and it is a very good source of information.
The latest entry has books and reads. You might just want to give it a quick read. The second book on the list is one I recommended several months ago on various types of dementia. It's still a good read. You may be able to find them at your public library, or if you've a Kindle, through the Kindle Reading Library.
/ / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \
Well, for now, this is it for this mid-week post. If you've any other suggestions, or would like to know more (for instance, what other blogs I'm following on Feedly) the please let me know!
Until Sunday, Have a wonderful week, and keep looking for the beauty in every atom that crosses your path.
I was able to begin re-connecting with the blog list I have been following (approximately 64 of them, believe it or not), and realized how much information there really is from people who are not all that different from myself.
So, I've decided to share some of their information with you, as well as their sites, in case you care to further your own exploration. I've also posted all these on the Google+ site, Lewy Body Support/Blog.
The first of all these, that I'd really like to share is this one from Lewy Body Journey. The author is a wife, mother, grandmother, who is caring for her afflicted husband. In her latest post, Mr. Lewy Visits like a Whirlwind, she recounts the adventures of the past few days.
What she describes is a further progression than my mother, but something we could anticipate within the next months, as Mom's "journey" seems to be plowing forward. But as the disease is peculiar, it's difficult to know if she'll actually experience syncopy; she does need some help balancing in small ways, but to think she'll also face-plant.....
I believe if you read this, it will give you a better idea of the disease in reality.
________________________
The next source is Dementia Journeys. This was inspired by the affliction of a grandmother. There are so many resources here, and the blogposts are very good. Of course it's out of Queensland, Austrailia.
One blogpost has the upcoming event on November 20 - 22 at 8pm, GMT, which makes it 12 noon here on the West Coast of the US. It will stream live online. In order to receive information about the stream and to participate, you'll need to subscribe to the mailing list.
What is going to be streamed? The show, "Memoria". This will be a presentation from Cardiff, Wales, with persons having a dementia diagnosis, caregivers, and professionals in the field. From what I gather, this should be quite an interesting and informative experience. It will also be intriguing as I've been reading comments in the MOOC from those in the UK, as well as other regions of the world.
Check it out.
________________________
For Reading, there is a new book out, which is also listed on Dementia Journeys. The title is, "We Are Not Ourselves" by Matthew Thomas.
This is a book about a woman with early-onset dementia diagnosis. The reviews have been favorable, and although it tackles a tough subject it is quite readable. It was written due to such an experience, and is well-researched. I look forward to giving it a read.
I've already downloaded it on Amazon (it's easier to read an e-book at 618 pages...). I'm sure there are also those of you out there who would appreciate the book, as well.
/////////////////////////////////////////////////////////////////////////////////////////////////////////
Next, there is the Lewy Body Dementia: Ten Plus Years of Care, Commentary and Cleaning Up, blog.
Yes, the title may sound a little bitter, but it's not, and it is a very good source of information.
The latest entry has books and reads. You might just want to give it a quick read. The second book on the list is one I recommended several months ago on various types of dementia. It's still a good read. You may be able to find them at your public library, or if you've a Kindle, through the Kindle Reading Library.
/ / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \ \
Well, for now, this is it for this mid-week post. If you've any other suggestions, or would like to know more (for instance, what other blogs I'm following on Feedly) the please let me know!
Until Sunday, Have a wonderful week, and keep looking for the beauty in every atom that crosses your path.
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