Showing posts with label Capgras Syndrome.. Show all posts
Showing posts with label Capgras Syndrome.. Show all posts

Sunday, May 17, 2015

Grumpy Cat's Mom or The Week Ending 05/17/2015

A fairly pleasant week.  But the weather played games as it went from warm to cold, blue to grey, sunshine to rain as the wee progressed.  But this evening it was quite pleasant and warm;  one would believe this would make certain people (ahem) more agreeable.  Ha!

On Wednesday, the RLC came for a long visit.  They relished in Mom's crosswords, trying to help her solve various clues and marveling at her ability to focus and complete them so well.  They spoke of bygone times and people they knew.  For some reason, Mom recalls more for Jean than she does with us.  That's fine, I still hear about it.

This evening found Mom rather tired.  My brother had driven her up the Columbia Gorge to Cascade Locks and then across the bridge to drive back on the Washington side of the river.  She remarked that it was very beautiful and relaxing.

Then she began to tell me about the work that was being done on the brown window sashes at her home (her sashes are a light khaki in her room - she'd never call them brown).  Apparently there was quite an ordeal.  Upon returning, I asked her about them and she told me I was imagining things, and that no such thing had ever occurred.

Before dinner, we engaged in some light banter.  My brother told a joke, my sister-in-law told a joke, but Mom was upset that these jokes weren't funny and the one my brother told was unkind (he told a joke about a proton...no one could be offended).  This continued, and she was unable to find much amusement in anything, nor any joy - in fact, it was as though we had our old mother back - one without a sense of humor who found her joy in chastising anyone who could find anything amusing.  She contradicted nearly everything that was said, despite our speaking on certain articles and research we'd read during the week.  Nothing we said went without criticism.  Ah, Mom.  However, she wasn't able to actually make coherent her arguments as they segued into statements that had nothing to do with anything with which any of us could relate.

We spoke of people we knew and gave updates, which she found offensive as these people should have been made fun of.  I would feel some guilt, however, there was nothing said that poked fun at anyone, just news and we spoke of how good it was to hear such good tidings - this nearly set her off.  Hmmm.  Comprehension and delusions seemed to be mixing with each other.

She sipped on her lemonade, which we finally spiked with some white wine and she seemed content.

When she stood for dinner the pain in her lower back overtook her and she let out a howl.  A few steps and sitting down on the couch seemed to help ease the suffering.

Later, I realized that her ability to stand and move had improved since last week.  I've a feeling she's walking and doing more exercises with her lower body, lately.  Must investigate.

She ate well  and then began hacking.  My brother told her she should stop smoking (a habit she never acquired) and she had a few words for him.  Then she went to the loo where the hack attack continued and concern for her health ensued.  I explained that there was a good chance that this could be the first stages of congestive heart failure which may be the path she takes to her end.  But we don't know.

She came out and a few minutes later had no recollection (or one that she was willing to admit).  This is difficult because Mom would always deny anything (even if it was smacking us all in the face) just to make her appear faultless and strong.

On the way home she inquired about my mother.  "Where does she live in Port Angeles?"
"Who do you think my mother is?"
"You know.  Stop playing games with me."
"Well, who am I, then?"
"You're my son."
"Then you know where in Port Angeles my mother lives."
"What are you talking about?  I have no idea.  That's why I asked you."
<sigh>
We passed a Franz bread truck with 3 trailers.  Mom thought this an excess of trailers to transport wood.  I told her it was bread, not wood.  She said it was both, naturally.
"So they make wood and break?"
"Of course."
"And you don't like the bread?"
"Not particularly."
"Is it because it's too crunchy? or is it the slivers on the tongue?"
"No.  It's too common.  There's too much bread, already."

And so it went.
As I delivered her to her room she sat down.  She was convinced my brother had given me her watch, but I found it in the lacquered box next to her bed.
"Oh, what a smart person you are!  Thank you!"
Then I took her hand and kissed her on the head.  She ripped her hand from mine.
"Act like an adult!  You don't grab people's hands like that unless you're someone's idiot child!"
"Love you!" I retorted as I left.

Note to self:  Make call to St. A's about her pain, and inquire about exercise.   Possible Doctor Trip in near Future. 

Thursday, April 30, 2015

Three of the Most Common Mental Issues with Lewy Body Dementia Patients

People still believe that Lewy Body Dementia (LBD or DLB) is just another label for Alzheimer's Dementia (AD).  It's not.  While they may have many traits in common, AD is on the far end of the spectrum of the dementias while LBD tends to hover between the two ends (Parkinson's Disease Dementia - PDD - is on the other end).  There are cross-overs, where someone with AD might present some traits, but the LBD patient tends to have specific symptoms not found with AD.

The following mental issues are those typically found with LBD patients, and sometimes with AD, or other forms of dementia not discussed:

1)  Hallucinations.
      Seeing something that doesn't really exist.  For example, bugs, animals, children, robbers, family members, or even events that aren't truly occurring.  There may be the hallucination of smells or tastes that exist only for the one singular person.
      I've been told by others who are caretakers for LBD patients (spouses, parents, siblings) that cats, mice, birds, and other animals magically appear only to their loved ones; these are so real the patients pet them or even chase them around (if possible).   While we've seen nothing such as this we did deal with the robbing, hostage taking, and kidnapping of Mom before she was hospitalized (spoken of in earlier posts).

2)  Delusions.
      This is different from Hallucinations in that this is believing something that isn't true - Capgras Syndrome is a form of a delusion, believing your spouse is cheating on you (Othello Complex), people are stealing your things, people are abusing you, you've won the lottery, people have been visiting you who couldn't possibly (due to death, distance, time, or many other reasons).
     Mom does believe people steal from her, that her clothes are not hers, that her mother comes to visit with her and they work on various tasks, that family members come and nap with her, and that I sleep in the same bed as she and go out in the morning to return at night.
   

3)  Obsessions/Compulsions.
      Compulsive preoccupation with things beyond reason, or doing activities over and over, often anxiously - needing to clean, sort repeatedly, hoarding, eating/drinking uncontrollably.
      While some of this may have been Mom before hospitalization, she does hoard silverware (just look in her purses, drawers, boxes full of things she picks up and fills with whatever.  There was even the time she tried to take the silverware from the restaurant table and stuff it in her purse - averted, but still...


While these may seem alarming at the time, there really is no reason to react dramatically or harshly.  A smile, question, and distraction seem to work very well.    There is no reason to argue or attempt to "snap them out of it!"  This would lead only to frustration, resentment, and hard feelings - in other words a battle that need not be fought.  Agreeing or having them tell you more makes more sense.

 Remember, for them, this is their reality even though it may not be yours.  You've no idea what's going to come next, nor do they.  For Mom, her reality can be quite surrealistic and this took some time and thought to realize, although it was right under my nose.

There are medications that can help with these symptoms, all with their own side effects.  Be sure to research them after speaking with your doctor or neurologist.  

Sunday, February 15, 2015

A Little Ray of Sunshine Goes a Long Way...or The Week Ending 02/15/2015

Blue Skies...shining on me.  Nothing but Blue Skies....

What a lovely day.  The temperatures were in the 60's, and all was well with the world.

When I popped in on Mom, she was in very good spirits.  She was mobile, able to get up and move about, and she was in a spritely mood.

She had a fear of falling over, though, as we walked to the car, but she held my hand and seemed more her old self, although only fragments shone through - good fragments.

We drove to Connie's house for lunch, and on the way she notice cherry blossoms beginning to sprout on the trees.
"Oh, look!" she exclaimed, "Those trees have flowers!"  They did, indeed.  This seemed to perk her attitude up even further.

She asked where Dad was buried and I told her.  "I wish someone would have taken me there so I would know," she replied.
"You were there, sitting right beside me when he was placed there," I remarked.  This seemed to appease her.
Next, she told me that Tony (me, but she often forgets it), Dad, my brothers, Lawrence, and Tom, were going to be going to ....
"Where?" I asked.
"You know.  Stop harassing me," even though this was the first time I'd asked...
"What about Chris (my other brother)?"
"Well, you know where he is, and until I have a car, a good acceptable car, then I'll be able to see them, too."  I let this one go.

Connie and Jean had seen Mother earlier in the week, and they had a jovial game of Scrabble, with Mom using 8-10 tiles, and forgetting about turn-taking, but as they are such great sports, this didn't spoil the game.
 Jean is so wonderful about emailing me the "doings" of the day which gives me a chuckle and an update as to Mom's condition.

We arrived at Connie"s, where we were treated to a wonderful meal of smoked salmon, a lovely veggie and fruit salad, and fresh green beans.  It was savored by all.

We had some lovely discussions about life, education, politics, history, current events, and Keurigs.    Mom didn't really understand the concept and wanted to take several home with her, rather than sample one using Connie's machine - but it all worked out, and she truly enjoyed the brew.
Mom learns about Keurig Pods


What was noticeable was Mom's difficulty following the conversation and responding in kind - rather she latched on to one word then went forward with her observations (which were non-sequiturs, but we managed to get her back on track).

She did ask, at one point, whether or not we were attentive to our grandmother.  The ladies were very helpful with the positive response I was able to grant.

Mother was full of wit, and even recited her favorite stanza from "The Psalm of Life" by Longfellow.
As we drove home, and she was in such a happy state, we had a very good conversation that felt normal, rather than those in which I must be on my toes to catch what track she's on.
Mom gets goofy!

Then, suddenly, she panicked.
"Where's Tony?" she said as she began looking all around the car.
"I'm right here," I replied, trying to keep my eye on the freeway while also attempting to figure out what was happening.
"No, not you.  He was here!"
"I'm right here.  It's just the two of us."
"Are you sure?"
"Yes.  Just relax.  It's all good."
She relaxed (Thank God!).

Could this have been Capgras syndrome rearing its head?  She does speak of me in the third person quite frequently, but never has such an incident happened before.   I must delve deeper into this phenomenon.
I left her in her room telling her I'd be right back.  She was quite agreeable, and I left her door unlocked.  After checking with the staff about her return I came back to find the door locked and no one answering.
So, it would seem she began to ready herself for a goodly nap which she richly deserved.

A very good day.

A very positive week.


Sunday, September 14, 2014

The Week Ending 9/14/2014

What a bumpy ride this week was!
Mom reacts to silliness

Tuesday, I went to pick Mother up for the funeral.  She wasn't dressed poorly, but not how I would want my mother to look at a funeral (very casual clothes).  But, considering the circumstances, there was very little time for figuring a change of clothes for her.  So, off we went.

The funeral was right down the street from Mom's residence, which made it all the easier.  As we walked in, she was reunited with two classmates from St. Mary's Academy.  She knew who they were, but didn't have a great deal to say to them, except that she remembered them.

During the rite, she inquired where Dad had gone.  I probed for more information and was informed that he had come with us and then just a moment before had just left.  I told her he had a couple of errands to run, but would try to be back in good time.  She bought it.  Whew!

After the funeral, which was nice and small, we went to the reception where we sat with her classmates and the departed's sister (who had delivered the eulogy).

Mom kept asking them the same questions about where they lived and when they graduated.  They handled it wonderfully.  They asked where Mom lived, and I told them at St. Anthony's.  Then they seemed to understand.

This was very good for Mom.  She had some good mental stimulation and it was outside the box for her - going down memory lane with people she'd not seen almost 67 years ago.  Wow!

When I returned her, she was full from the cake and punch, so she wanted to nap.

I then checked in with the staff.  They informed me she was under the belief I was sleeping in her bed with her every night, but getting up early to return at some point - she was waiting in her room every morning for my entry; I told the staff to tell her to go ahead and do whatever until I returned.

The staff also informed me that she had really declined in the previous two weeks.  Her hallucinations were more pronounced and she was not sleeping as well.

Thursday, the RLC came to visit armed with Trivial Pursuits.  The reports were positive.  Everyone had strong suits, and it provided a great deal of fodder for chatting.  It was a great change from the weekly Scrabble game.

Today, Sunday, I went in early to take Mom to Mass.  She was in a mood.  One of the staff, who she normally likes and enjoys was receiving Mom's wrath!  Mom was insulting and muttering evil under her breath.  What I wasn't aware of was this happened daily for the past week and a half!  My fear was Mom was beginning to suffer from capgras, or the delusion that someone is not really who they are (when they truly are!).  But, I was wrong.  Phew!

As I put Mom's stockings on her feet, she began cursing at me and called me a very disgusting name.  I looked up and told her that if she ever spoke to me like that again I would leave immediately.  This helped close her yap.   On the lighter side, her feet have begun to shrink in girth - her shoes are beginning to fit much better.

Finally, we were able to leave.  On the way to Mass, she told me to never threaten her again.  I stated that what she said was absolutely inappropriate and for her to remember that if she insulted me then it boomeranged back to her, as I was supposedly her genetic product.  Again, she went silent.  And then the day began to brighten.

Walking to and from Mass and the car, I noted that her shuffling is much greater.  Her balance was improved, but she is truly shuffling.

We went to Jean's for a lovely lasagne lunch and a wonderful visit.  After lunch and pineapple sherbet, we left.  Mom told me that Jean's family had had that piece of property for generations, and developed it.  She told me how wise Jean's grandfather had been to set that piece of property aside for his children and grandchildren.  I thought, 'What a wonderful delusion that I must share with Jean!' as this was far from true, but in Mom's reality it is.

I dropped her off and she went down for a nap.  She was truly exhausted.  So, after I placed the orchid back in the window, and the beautiful dahlias Jean had given her next to it, I parted.

Wondering what adventures this next week will bring!